In December 2016, the National Institute for Clinical Excellence (NICE) announced that it was seeking views on its proposed improvements to engaging with lay people (in our case patients).

Tackle has responded to that and you can read our submission here.

The full consultation document can be read here and is needed to understand fully the context of our response. A summary of what NICE is currently proposing - BEFORE the results of the consultation have been taken into consideration - is as follows:

NICE is reviewing its approach to involving lay people (in this context, people who are not health or social care professionals) in developing guidance and standards.

We have talked to our stakeholders (both inside and outside NICE) and reviewed studies on best practice for involving lay people.

We have used the information we gathered to develop improved principles (see page 7 of the full document) for engaging and involving lay people.

We have also proposed specific changes, which are:

  • Standardising how we engage with and involve lay people across NICE’s guidance and standards programmes.
  • Involving people earlier and keeping them involved throughout the development process.
  • Being clearer on how we find and take account of information about people’s experiences of care, and their experiences of their condition and its treatment.
  • Recruiting a broad pool of people (including people with knowledge and experience of specific conditions or services) who can be drawn on as needed to join decision-making bodies.
  • Introducing a formal feedback process so that people who help develop our guidance and standards are aware of the impact of their contribution.
  • Making better use of social media to communicate with people about our guidance and standards, and to make it easier for them to communicate with us.
  • Reinforcing the message among NICE staff that involving people is everyone’s responsibility. We are seeking your views on these proposals.