Monthly briefing april 2023

Monthly Briefing – April 2023

Welcome to our Monthly Briefing for April. This briefing is for you as a leader/organiser member of one of our network of Peer Support Groups. We hope you find the content useful. The Hot Topics section contains information that your members will find useful; if you are able, please share it with them.

This month’s poster group is APPLE (Association of Prostate Patients in London and Essex) led by our Trustee and Former Chair Ken Mastris, and supported by Jane Smith, who acts as group secretary. APPLE meets monthly every second Monday of the month from 7.45 pm to 9.00 pm at Fullwell Cross Library, Barkingside, Ilford. I visited this vibrant and supportive group on Monday evening and look forward to being with them again as they celebrate their 20th anniversary later this year. 

Also, on Monday, Aidan visited the Kidderminster and Worcestershire PCSG, where he spoke to around 60 people. If you would like one us to come and talk to your group, please do let me know. 

Last night we held the first of our Equality, Diversity and Inclusion workshops. There are two further dates for you to choose from, so please consider clicking here to sign up for one of these important workshops

At the Support Group Leaders meeting earlier this month, various questions were asked about our partnership with Prostate Cancer UK. Below you will see we have answered these questions. If you have any further questions, please do get in touch.

Finally, following a board meeting at the beginning of the month, I am delighted to inform you that the Trustees elected Aidan Adkins and Roshani Perera as Co-Chairs and Tony Collier as Vice Chair. Watch this space for further news once Aidan, Roshani and Tony have settled into their new roles. 

Tackle Prostate Cancer – Prostate Cancer UK Partnership FAQs 

1.    What is happening to the Zoom licences currently provided by PCUK?

Prostate Cancer UK currently provides Zoom licences to a number of Group Leaders. If you are an existing licence holder, please contact us at info@tackleprostate.org to let us know if you still need access to a Zoom license to run your group meeting. Please note you do not need a licence to access someone else’s Zoom meeting (Support Group Leaders meeting, workshops etc); you only need a license if you want to run your own Zoom meeting. 

2.    What is happening to the Public Liability Insurance provided by PCUK?

There is no financial provision by Tackle Prostate Cancer for continuing the blanket coverage for public liability insurance previously provided by Prostate Cancer UK for some groups.  So those groups would be responsible for their own insurance coverage when the existing coverage lapses. The board of trustees at Tackle are currently discussing how we could potentially support small groups to part-fund insurance costs through our Support Grants on a case-by-case basis. Please contact us at info@tackleprostate.org if this applies to you.

3.    What is the PCUK stated attitude to PSA testing?

PCUK has issued a PSA consensus statement. Three of our current Trustees collaborated on this work alongside PCUK

4.    What are PCUK doing about GP education?

PCUK provide a broad range of educational offers to HCPs, including primary care clinicians. Click here to learn more

5.    What is PCUKs advice to a man being refused a PSA test by their GP?

PCUK lists actions one could take if your GP refuses a PSA blood test 

6.    How are PCUK going to support handover to Tackle?

Tackle Prostate Cancer is in regular conversations with Prostate Cancer UK. All groups, including those who are not our members, have been written to jointly by Chiara and Steve. Our existing Group Leaders will see no difference in the support they receive from Tackle. Non-Members will see an increase in benefits to Support Group Leaders provided as part of the Tackle offer. 

7.    Will PCUK still be signposting to Support Groups?

Absolutely 100%. We firmly believe our partnership will strengthen access to Support Groups. As part of our agreement, PCUK will signpost all enquiries to our directories. These directories will eventually be one directory managed by Tackle Prostate Cancer. Currently, PCUK is seeking permission from non-members to pass on their information to us. Group Leaders are already reporting an increase of people finding their group through the PCUK helpline. 

Tackle Representation Survey

You may have seen or even filled out our Tackling Representation Survey. Where we’re working with METRO Charity to gain anonymous feedback from people like yourselves, to understand more about the full range of people who use peer support groups and better meet the needs of the diverse population living with prostate cancer in England and Wales. 

We need lived experience from individuals to help shape how we (Tackle) can improve our inclusivity and accessibility to those who lead and use prostate cancer support groups. 

If you could share 10-15 minutes of your time to fill out the below it would be much appreciated. Although the feedback will remain anonymous, there is a chance to submit your email to be entered into a prize draw to win a £50 Gift4All voucher. The winner will be chosen at random. 

Please support us in our efforts to reach as many people as possible with our survey by distributing it to your group members. The link to the members survey for your group members can be found here

April Support Group Leaders Meeting 

This month we heard from Tony Collier, one of our new Trustees and discussed the PCUK partnership; see FAQ above. 

If you do not currently attend our Support Group Leaders meeting, then please consider coming to the next one. The meeting is open to anyone currently in the organising role of one of our support groups. 

At our next meeting, we shall be discussing some of the themes arising from the work we all did at our conference; as usual plenty of time for questions. As well as updates on campaigns and news in our regular Hot Topics Section.

Hot Topics 

One of the outputs from the Support Group Leaders meetings that you told us that you find helpful is our regular Hot Topics section. This slide set can be directly shared with your group members. This month contains important news from Prostate Cancer research about their Infopool project. This month’s Hot Topics can be found by clicking here.

To view the full monthly briefing click here

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